Here's the girls at their new daycare with their cousin:
The other big thing Gwendolyn had to go through this week was her bi-annual SB clinic visit. I really wasn't too nervous for this one as we've done this every six months since she was born and really nothing huge has ever come from it. Well, this time ended up being just a little bit different. Still nothing huge I guess, but there will be something new that Gwendolyn will have to get used to again. First off we are going to try even harder to see what she can do potty training wise. It's always a wait and see with SB kids, but she's shown some promise in the area so we are just going to try harder. I think we need to give her more credit than we have been on what she is able to do. She's surprised us in so many ways already. She even asked her teacher at school to go potty and actually went (both) when she was taken.
But the biggest change Gwendolyn will have to endure will begin next month. For over two years now we have been told that her right side is really tight. She can't fully straighten out her knee, and her right ankle/foot will not go to a complete neutral (90 degree) position. She tends to walk up on her toes a lot. This can cause problems down the line with bracing and mobility. In fact we have already seen some issues with keeping her right shoe and brace on and we are pretty sure this is the cause.
At this clinic we were very fortunate to have an excellent PT and the actual director of the SB clinic visit us. They spent a very long time talking to us and each other, and really looking at her walk and the positions her feet would hold. They ended up suggesting that we do a set of serial castings for her over the next 4 weeks or so. This was a bit surprising but at the same time reassuring to me. So far we have always been told to just keep stretching her every day and if that didn't work they would need to do surgery to loosen her. Which we have also been told by others to avoid at all cost for as long as possible. Needless to say we have had mixed messages about this situation. So I was relieved to hear there was something non-surgical that could be done for her now and not just "wait" to see if the stretching helped her.
So what will happen is that we will take her the first week in November to get her first set of casts. We are still unsure if she will get casts on just her right leg, or also on her left leg. They are supposed to be walking casts so hopefully she will be able to still walk when she has the casts. (Not sure how she will tolerate that yet.) Then every week, for about four weeks after that she will be taken back for a new cast and the hope is that with this "24 hour" stretching she will be able to have some outpatient PT at the hospital to kind of teach her how to walk correctly again and we won't have to have the need for surgery. We would welcome any prayers for our girl during this process. I know she's not going to like it and my fear is she will become discouraged and not have the drive to walk like she has now. The whole thing is a risk but we are hoping we are making the right decision. Anything to avoid surgery. Because that could end up causing even more damage.
Here is a picture of Gwendolyn at clinic. She was an absolute trooper during this looooong day of doctor visits and poking and prodding.
We have had some fun the past few weeks as well! We've had birthday parties to go to and lots of sisterly love. Just today the girls were giving each other hugs while sitting on the floor and Gwendolyn said, "I love you sissy." And I heard Braelyn respond, "You are my bestest friend." Life is good.
Gwendolyn doing her homework. |
Braelyn is still wishing it was summer. |
Her favorite part of birthday parties....the cupcakes. :) |
Do I have something on my lip? |
Daddy had a day off last week and decided to take them on a little field trip to meet the Jayhawk. I think by the look of this picture Gwendolyn will end up being our Hawkeye. :) |
Another field trip with Daddy. This one to Panera to enjoy pumpkin cookies. This picture cracks me up. |
The cast plan sounds really promising. Please keep us posted and let us know if the girls need a little play time. P.S. I LOVE their reactions to the Veggie Tales song. That is adorable!!!
ReplyDeleteGwendolyn! You just rock! How proud you guys must be of your little sweet sisters. :) Soooo blessed. Will be thinking of Gwen in the coming weeks. Saying prayers for her!
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