Yesterday was Gwendolyn’s office visit with the neurologist to review her MRI.
First the bad news, the fluid in Gwen’s ventricles had slightly increased over her scan six months ago. However, the neurologist noted that even with the increase, Gwen’s brain looked to be very “happy.” (We guess now we know why she’s started saying that word so much of late). He also noted that the syringomyelia cyst (commonly known as a syrinx) that they had found on her spine during the previous scan hasn’t changed in size or shape. That's obviously a good sign. The neurologist told us that a syrinx is pretty common for spina bifida kids (approximately 40% have them according to him) but that he was very pleased it remained constant and had not grown.
So, given the fact that she has a “happy” brain, the neurologist is merely going to follow her during Gwen’s normal clinic visit in six months. He said it’s evident to him that even with the ventricles being enlarged, Gwen’s not experiencing any side effects at this stage.
While we would have preferred to hear there was no fluid to be found in her ventricles at all, we were very pleased with the overall diagnosis.
As for her sister, Braelyn’s still been a little bit of a finicky eater but apparently that hasn’t stopped her from engaging with her toy food set. Somehow her frustration as she tries to figure out how to break the bread (or any of the other fruits and vegetables in the set) into slices is about as comical as it gets for Mom and Dad!
Well, that’s about all that’s fit to print for now… We'll update you all again soon.
First the bad news, the fluid in Gwen’s ventricles had slightly increased over her scan six months ago. However, the neurologist noted that even with the increase, Gwen’s brain looked to be very “happy.” (We guess now we know why she’s started saying that word so much of late). He also noted that the syringomyelia cyst (commonly known as a syrinx) that they had found on her spine during the previous scan hasn’t changed in size or shape. That's obviously a good sign. The neurologist told us that a syrinx is pretty common for spina bifida kids (approximately 40% have them according to him) but that he was very pleased it remained constant and had not grown.
So, given the fact that she has a “happy” brain, the neurologist is merely going to follow her during Gwen’s normal clinic visit in six months. He said it’s evident to him that even with the ventricles being enlarged, Gwen’s not experiencing any side effects at this stage.While we would have preferred to hear there was no fluid to be found in her ventricles at all, we were very pleased with the overall diagnosis.
As for her sister, Braelyn’s still been a little bit of a finicky eater but apparently that hasn’t stopped her from engaging with her toy food set. Somehow her frustration as she tries to figure out how to break the bread (or any of the other fruits and vegetables in the set) into slices is about as comical as it gets for Mom and Dad!Well, that’s about all that’s fit to print for now… We'll update you all again soon.
No comments:
Post a Comment