Pinching Ourselves

Strange but we awoke this morning almost expecting that Gwendolyn’s homecoming was a farce. We guess that’s what happens after two months of back-and-forth in the hospital.

Regardless, the girls did rather well last night. While we obviously wish Gwen didn’t require a feeding tube right now, there’s something to be said for setting her feed to run all night long and only needing to wake up once to quickly turn her pins in the middle of the night. No worries though, Braelyn was sure to awake twice overnight for a feeding just to make sure no sleep was had by Mom or Dad.

;)

Still, we wouldn’t have it any other way!

Gwen’s healthcare dance card is rather full in the short term. Tomorrow is a follow up with our pediatrician… Friday’s an x-ray to check on the process of her jaw extraction… Next Wednesday is another x-ray followed by a consult with the plastic surgeon on Gwen’s jaw… The week after that, the occupational therapist will review how her new jaw (which should be fully extracted by that point) is functioning... By the beginning of February, Gwen should be shedding her current feeding tube for a much easier to use and care for Mickey Button… Shortly thereafter, we expect Gwen will have her jaw extraction device removed.

So, the long and short of it is that a lot will transpire before we even get back to the follow up on the myelomeningocele repair from her spina bifida. In fact, those initial follow up appointments had to be pushed back until the middle of March so we could focus on successfully completing her jaw procedure.

Regardless of that laundry list of medical appointments, the fact that “Gwenner” and “Brae Bear” are sharing the same nursery again leaves an indelible grin plastered on our faces.

Since we’ve finally got Gwen back home, we likely won’t be posting daily updates on the blog. Right now we just want to focus on making up for lost time with our family.

But don’t fear! You can expect that we’ll give regular blog updates on the girls as we have news to share… So many of you have voiced a desire to follow along as our girls grow. Obviously, we wouldn’t have it any other way. After all, you seem to have forged as much of a bond with the girls as we have and you are all so very important to us.

With that said, I’m sure we’ll be blogging again very soon…