Saturday, December 19, 2009

Scrooged!!!


Well, we have some unfortunate news. On Friday it was discovered that one of the devices in Gwendolyn's jaw has come apart. How and when it happened is unknown.

My strong feeling is that it is related to her breathing issues... that when they inserted the breathing tube during her last procedure, they opened her mouth too far and rendered the device useless. Of course, no matter how much we believe that, it can't be proven. Again, it just seems too coincidental to not be the case. The other point of contention is that this exact possibility was brought up by me when these breathing issues came to the surface last weekend but I was quickly dismissed because I was told it was an impossibility her jaw was opened that far when the breathing tube was inserted. Well something happened!!! In fact the plastics doctor told Heather on Friday that he's never seen this happen to an infant before. The only time he's seen it is either when children have fallen and hit their chin or have been eating something hard that popped it out of place. Needless to say, neither is the culprit in this circumstance.

Regardless of how and when it happened, the unfortunate truth is that it has and we need to deal with the ramifications of it. Currently, the left side of Gwen's jaw is seven millimeters more recessed than the right side. And so, on Tuesday afternoon Gwen will once again undergo surgery to implant the extension devices on both sides of her jaw. In addition to evening out her jaw, both sides will actually be extended out farther than before. The plastics doctor said that while the previous device greatly improved her jaw's placement, it actually could have come out farther to reach the optimal location. So, they'll extend it out to a more prime position for her situation. In the end, it could even help solve her eating issues but we'll just settle for getting her back to the point where's she's breathing normally without the assistance of humidified room air.

As you probably surmised by now, that means there's no chance that Gwenner will be home for Christmas. On the bright side, we've been told we won't have to wait until the extraction is fully complete like before. The plastics doctor felt that since we just went through this whole thing a couple of weeks ago, we'll be more than amply prepared to deal with turning her screws at home.

So, rumor has it that after she's off the breathing tube and out of a danger zone, we'll be taking her home. Of course, that will be well past two months since we were admitted and we've been told many, many times before that we were close to going home so call us cynical if we hold off on the champagne toasts until Gwen is indeed at home.

As you can see from the top of this entry, at least Gwen got a visit from Santa in the hospital. We'll have to be sure that Braelyn gets to visit the jolly guy herself.

That's all for now. I anticipate we won't have much else to report until after the new jaw devices are installed on Tuesday, which ironically is the day that Nana and Poppa arrive for a Christmas visit.

And so it goes...

3 comments:

  1. I'm so sorry to see this news and know that Gwen will need another procedure. We will just keep on praying and I fully expect to hear some more positive news this week. Love you all so much - sending a Christmas wish and many prayers for this sweet baby to be home in her parents' loving care so very soon. So glad that Nana and Poppa will be here to love and care for ALL of you this week. Love you guys -
    Steph and Rance

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  2. Hey guys. Wow....I'm sorry to hear this as well. But part of me is glad to hear it is something fixable and not another issue. Although this must be very frustrating for you both! We are sending love and prayers.
    Keri and Jim

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  3. Oh, Heather! I know you must be SO frustrated at all this. At least they know the problem and things will be resolved. Blessings come in disguises, so being able to extend her jaw even more now might just help her down the road. You guys are surely in our prayers...she is just a beautiful little girl! You know, she won't even remember all this. What stories you will have to tell her. Let me know if there's anything I can do to help!
    Kristin

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